Monday, December 12, 2011

Being Bella's Mom

Being Bella's mom means I live with fear.
I awake every night, place my hand across her chest, to ensure that she is breathing.


Being Bella's mom means I live with the difficult choices I have had to make.
I know that in doing so, people will not understand and that can be lonely.

Being Bella's mom means I live with permanent heartache.
I know that, with our current medicinal science, I may someday have to tell her that she cannot bear children.

Being Bella's mom means I live with sheer terror.
I know that it is quite possible that I could outlive her.

Being Bella's mom means I live with sorrow.
I know we will lose our house, and perhaps experience financial ruin, due to her outrageous medical costs.

Being Bella's mom means I live with disappointment.
I know that I can never move my family overseas as I would have loved, due to the lack of her immune system and the proper care.

And yet...

Being Bella's mom means I get to experience pure joy.
I know what it is like to behold a miracle.

Being Bella's mom means I get to experience raw Faith.
I know what doubt looks like, and I know a God who can handle it.

Being Bella's mom means I get to live in the moment.
I know what it means to truly take nothing for granted.

Being Bella's mom means I get to carry another's burden.
I know what it is like to be loved and cared for by a village, and I will do everything in my power to do the same for another.

Being Bella's mom means I have Hope.
I know that there is more to life than this - on any given day.

Being Bella's mom means I get, well, I get what really matters.
Period.
Just from witnessing her smile.